As a result of advances in public health and the development of lifesaving medical technology, Americans live longer than ever. Death, when it comes, often follows a chronic or progressive illness.
Unfortunately, the care received near the end of life often does not reflect a person’s values, goals, and informed preferences. Although the majority of people say they would prefer to die at home, two-thirds of Medicare beneficiaries die elsewhere, such as a hospital’s intensive care unit. People frequently endure unwanted treatment and suffer from inadequate pain management and shortness of breath, which often puts an enormous stress on family caregivers. A fragmented medical system and a lack of communication among doctors, patients, and families may result in less than optimal patient experience. But difficulties in the health care system may also be caused by the reluctance of patients, families, and doctors to discuss options and the alternatives to further treatment. Having these conversations early in the course of a serious illness is important, because most people who are near death are unable to communicate their wishes.
Pew seeks to improve end-of-life care by advocating for policies that help people make informed decisions about their treatment preferences, improve the documentation of these preferences, and hold health care providers accountable for honoring patient wishes and delivering high-quality care. Additionally, the project will highlight innovative ways of providing care to seriously ill people and their families as the patients reach the end of their lives.
On June 23, The Pew Charitable Trusts sent a letter to Senators Susan Collins (R-ME) and Claire McCaskill (D-MO), thanking them for their leadership on palliative and end-of-life care issues and urging them to pass legislation that would help support people with life-threatening illness. Read More
The Pew Charitable Trusts announced its support for the Personalize Your Care Act 2.0, introduced by Representatives Phil Roe (R-TN) and Earl Blumenauer (D-OR). The bipartisan bill would advance policies designed to help people make informed decisions about care near the end of life and improve documentation of these preferences across care settings. Read More
On May 2, the Centers for Medicare & Medicaid Services (CMS) released a final plan that outlines how the agency intends to use $75 million for the development of measures to assess the quality of clinical care provided by physicians under Medicare. Read More