Report

• The Genetic Town Hall: Public Opinion About Research on Genes, Environment, and Health

  Jan 30, 2009 - The Center’s Public Consultation Project on Genes, Environment, and Health consisted of focus groups, interviews with community leaders, a survey, and a series of town halls. This report summarizes the five town hall sessions, which took place from March-May 2008 in Jackson, Mississippi; Kansas City, Missouri; Philadelphia, Pennsylvania; Phoenix, Arizona; and Portland, Oregon.

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• U.S. Public Opinion on Uses of Genetic Information and Genetic Discrimination

  Apr 24, 2007 - While Americans are generally very supportive of the use of genetic information to improve their own health and the health of their families, 92 percent are wary that this same information could be used in ways that harm them, according to this survey.

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• Public Health at Risk: Failures in Oversight of Genetic Testing Laboratories

  Sep 18, 2006 - Report summarizes data from the Genetics and Public Policy Center’s recent survey of genetic testing laboratory directors and describes the role of the Clinical Laboratories Improvement Amendments of 1988 (CLIA) in ensuring laboratory quality.  

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• IVF, Egg Donation, and Women's Health

  Jul 14, 2006 - This paper explores what is and what is not known about the risks of ovarian stimulation and oocyte retrieval, for both a prospective mother and a prospective egg donor.

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• Creating a Genetic Testing Specialty Under CLIA: What Are We Waiting For?

  Nov 29, 2005 - This paper reviews the comments submitted in response to the NOI and identifies areas of consensus as well as areas of concern and opposition.

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• Values in Conflict: Public Attitudes on Embryonic Stem Cell Research

  Oct 13, 2005 - Report on public opinion about stem cell research.

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• Human Germline Genetic Modification: Issues and Options for Policymakers

  May 23, 2005 - Report intended to facilitate informed public discussion of human germline genetic modification.

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• Cloning: A Policy Analysis

  May 23, 2005 - A comprehensive analysis of the science of cloning, the moral and ethical arguments that frame the debate, and rapidly changing policies at the state, federal and international levels.

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• Reproductive Genetic Testing: Issues and Options for Policymakers

  Feb 18, 2005 - Report highlights crucial scientific and medical information, ethical and social implications of reproductive genetic testing and assesses both current and potential oversight for development and use of these tests.

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• Reproductive Genetic Testing: What America Thinks

  Feb 18, 2005 - Report on public opinion assessment of Americans' attitudes about reproductive genetic testing.

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• The Genetic Town Hall: Making Every Voice Count

  Dec 20, 2004 - Six Genetic Town Halls provide a setting for informed debate and discussion about the benefits and potential drawbacks of reproductive genetic testing.

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• Notes from the President: Responsibility (Summer 2004 Trust Magazine article)

  Oct 01, 2004 - Principled action and the public trust.

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• Custom Policy for “Custom Kids”? (Summer 2004 Trust Magazine article)

  Jul 01, 2004 - The Genetics and Public Policy Center looks at the policy vacuum regarding reproductive genetic technologies and asks: "Is this what we want?"

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• Preimplantation Genetic Diagnosis: A Discussion of Challenges, Concerns, and Preliminary Policy Options Related to the Genetic Testing of Human Embryos(2)

  Jan 08, 2004 - A report from the Genetics and Public Policy Center.

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